Dedicated to all the people suffering from a rare disease.


Rare Lives is a photographic journey with the aim to investigate needs, hopes, difficulties, but above all, joys and daily achievements of those living a "Rare Life".


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See all stories on our journal


“I am on an electric wheelchair, I am not self-sufficient, but I do all I can to overcome my limits”

Marie  |  Osteogenesis imperfecta

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In Europe, 30 million people live with a rare disease.

This project wants to give them visibility and strength, raising awareness and attention of the citizenship on rare diseases through the construction of a network which combines the experiences of those living the condition of rare patient and those who are not.


Ready to help?


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